Resources

GOING PLACES WITH YOUR ANGEL? These iPad books are great for preparing your child for transitions or heading off on a trip.OFF WE GO resources

 

Jade and the Walking Stick: a book inspired by the story of a young girl with Angelman Syndrome, Jade and the Walking Stick is a fantastical tale of a special needs child coping with the challenges in her life. Written for the author’s daughter, the book symbolizes the developmental milestones common to special needs children through a fantasy fiction narrative. A fable of acceptance and triumph, Jade and the Walking Stick should inspire others to face all of life’s challenges with a smile. Now also available to download for iPad or iPod, here: Jade and the Walking Stick

Ryan and Keisha Tipton talk about their angel Rylee, Angelman Syndrome, and the book:

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February 3, 2012 marks the grand opening of the UNC Comprehensive Angelman Syndrome Clinic at the Carolina Institute for Developmental Disabilities (CIDD). Funded in part by the Angelman Syndrome Foundation, this new clinic brings together multiple subspecialists into one setting to address the complex medical and psycho-educational needs of individuals with Angelman syndrome and their families. Depending on the specific concerns, patients and their families have access to a clinical geneticist, neurologist, psychiatrist, psychologist, speech language pathologist, physical/occupational therapist, genetic counselor, social worker, and nutritionist.

CIDD Comprehensive Angelman Syndrome Clinic

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NEW – for the Management of Angelman Syndrome

A printable PDF file with the latest comprehensive guidelines for caring for those with Angelman Syndrome; great to hand on to your teachers, doctors, specialists, therapists. I always take a copy along to the hospital when my son, Andrew meets a new specialist or goes in for an operation (they keep the copy on his file).

A Clinical Guideline: Angelman Syndrome Guideline Development Group:   Dyscerne: Angelman Guidelines

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Communication Ideas using iPads/iPhones:

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Help with Signing:

Help with NZ Sign Language:Deaf Org NZ – sign language

NZ Sign Language: NZ Sign Language Online

ASL Pro is a completely free online ASL educational resource website featuring over 11,000 ASL Signs (American Sign Language)

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AAC devices:

Here is DynaVox’s AAC Implementation ToolKit: 

http://www.dynavoxtech.com/training/toolkit/

You could use Boardmaker, but you could also use other pictures. People with Autism/Angelman Syndrome, seem to prefer using real pictures over cartoons.

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