June 2010
Date: June 21 - Conference Sheds Light on Rare Disease with Links to Autism
__________________________________________________________
Date: June 20 - Joining us was Grammy and Dove nominee Regie Hamm. He’s had 20 number one hits, including the song Oprah called the theme of the 2008 Summer Olympics “Time of My Life”. We talked about his new single “Set it on Fire” and his adoption of a little girl from China.
http://www.fox17.com/newsroom/morning/videos/vid_70.shtml?sms_ss=facebook
__________________________________________________________
Date: 20 June 2010
Date: Jun 01, 2010: Angel Elsie For Conquer the Canyon
This video introduces the audience to a 3yr old girl with Angelman Syndrome. The father, Eric Wright, describes his challenge to hike the Grand Canyon to raise money to support research and therapies to benefit individuals with Angelman Syndrome and their families. Please click here to watch the video.
________________________________________________________
MAY 2010
__________________________________________________
19 May 2010
regiehamm.com
This week’s blog is about my angel and for all the special people of the world …
_____________________________________________
Date: 17 May 2010
2010 ASF National Walk Preliminary Figures – Approx USD 700, 000
Thank you to all who made the 2010 ASF National Walk a success. Please check back often as numbers will be updated every week. read more…
______________________________________________
Date: 15 May 2010
Cycle of inspiration: 60 years of ‘overcoming obstacles rather than accepting …
Times Herald-Record
In Zach’s case, these are symptoms of a rare genetic disorder called Angelman syndrome — a condition that causes a variety of neurological problems, …
Angelman Syndrome Foundation
http://www.angelman.org/walk/2010-walk-preliminary-figures/?lid=2479
Foundation for Angelman Syndrome Therapeutics – Exciting advance in measuring how neurons communicate
http://www.sciencedaily.com/releases/2010/04/100419151121.htm
________________________________________________________
Date: 8 May 2010
Girl Scouts Raise Awareness for Angelman Syndrome (VIDEO) Jane Park 
April 27, 2010 PAINTED POST– Girl scout troops in Painted Post learned to “Be a Friend to Every Girl Scout” in a very special way Tuesday night. The inspiration was six-year-old Arianna Manning, who has Angelman Syndrome, a rare condition characterized by absent speech, excessive laughter, and seizures.
www.weny.com/news-local.asp?ARTICLE3864=9153530
________________________________________________________
Date: 6 May 2010
SD boy gets pop-up camper from Make-a-Wish
Jamestown Sun
Olness has Angelman Syndrome, a neuro-genetic disorder that occurs in 1 in 15000 live births. Effects of the syndrome include developmental delay, …
________________________________________________________
MARCH – APRIL 2010
Rodney students Keegan Lewis, Andrew Cranmer and Blake Brookland
are just three of the many local children who will be affected by an
Education Ministry special education review
MARCH – APRIL 2010
________________________________________________________
Rodney students Keegan Lewis, Andrew Cranmer and Blake Brookland
are just three of the many local children who will be affected by an
Education Ministry special education review
________________________________________________________
