The Angelman Network (NZ)

angelmannetwork — Tue, 02 Aug 2011 08:00:16 +0000

The Angelman Network (TAN) seeks to connect people impacted by Angelman Syndrome; in New Zealand and around the world.

A wide range of information related to Angelman Syndrome is available on this website, eg. resources, news items, articles, facebook and website links, video clips, and blogs – with regular updates. We hope this active site will offer support for families, reliable information for the medical and educational professionals, and also help to promote awareness of Angelman Syndrome.

We also facilitate workshops and social gatherings and events around NZ; to provide support, promote friendships, educate and fundraise.

Pages Updated -

Journey of Hope – prepared for the FAST Gala 2011

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NEW - Management of Angelman Syndrome A Clinical Guideline Angelman Syndrome Guideline Development Group – a PDF file

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The Angelman Network would like to acknowledge the generous assistance and legal advice provided by Suzy Garnett and Shannon Mony from the Christchurch Office of

The Angelman Network is a Registered Charitable Trust and our Charities Commission Register number is CC46746.

The Angelman Network

The Angelman Network (NZ)

CONTACT US

Darren Humphries (South Island NZ) Ph: 03 387 0036

Ursula Cranmer (North Island NZ) Ph: 09 426 2313

Jonathan Winther (Auckland) Ph 09 813-5194

Jeanne Coker – Christchurch Ph 021 406064

or contact by email angelmannetwork@gmail.com