Most children with Angelman Syndrome have very abnormal electroencephalograms (EEGs), and almost all are prone to significant seizure activity that is often tricky to control in childhood. More than 80%/up to 90% of children with AS have epilepsy, with onset typically in the first three years of life. The children frequently have mixed seizure disorders, ranging from as mild as occasional absence seizures, to hundreds of drop attacks per day. Seizures can be life threatening and correct medication is vital in order to control them. Seizures can interfere with learning, and can be linked to certain unusual behaviours. Carers need to be alert at all times and keeping a detailed log can be a helpful tool to identify possible triggers/types of seizure activity.
An ‘angel’ will demonstrate an abnormal EEG with a characteristic pattern of large amplitude slow-spike waves.
If you have issues or questions related to Angleman Syndrome and epilepsy, you can chat with other parents in the fb group:
Angelman Syndrome Seizure Information
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Henry’s Story
Angelman Syndrome and Severe Epilepsy: Treating the Whole Child. Henry’s Story: MassGenHospital
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SEIZURES 101
A detailed write-up and explanation of seizures by Erin Sheldon (Canada). Her daughter, Maggie, has Angelman Syndrome.
In New Zealand:
